I know it's been ages since my last post but it has been a little crazy. I started an oral chemo called Tykerb. Three days later I had seizure in the street behind a parked car. FYI, New York streets are not uncomfortable places to catch some shut eye. I'm not even sure I feel that badly for the homeless anymore. Ok, bad joke but I make bad jokes about cancer. Why shouldn't everyone be fair game? Perhaps I'll become the Chelsea Handler or Kathy Griffin of cancer.
Anyhoo..the "no news" today is that they canceled my follow up brain MRI and, therefore, the follow up appointment with my radiation oncologist, Dr. Narayana. Who is the "they" and why did "they' cancel it? Excellent questions my friends. My insurance company will not approve the scan until it's been three months from the surgery. Folks, I have a fast growing cancer and another three months does make a difference in my world.
WARNING: ICY ROADS, um, I mean, TANGENT AHEAD. It is beyond me that there is a segment of the population that believes our health care system is just fine the way it is. We definitely have the best doctors and technology but how can we access it in a timely fashion with reasonable compensation? Ok, off my soap box. I think we all agree that there is room for vast improvement. So, the new date for my follow up is December 15th.
I suppose I should be thankful that I can spend Thanksgiving focusing on the things I am grateful for this year. There are things to be grateful for this year..right? I jest. My family and I have many, many blessings for which to be grateful, not the least of which are our family, friends and even strangers who have supported us through these incredibly difficult months. The day after Thanksgiving is another story. I have to get a PET scan that day after right after my chemo treatment. I won't find out the results from that scan until the following Thursday so I will have a whole week to worry about that. Whatever the results are I have something to look forward to...a trip to Puerto Rico!
Yes, we are finally getting the heck out of dodge. I think I have mentioned my dear, college friend, Marcos. Well, he and his family have generously offered their beach condo in Aguadilla to us. When this all began back in February, he began insisting we get away for awhile. As you all know that has been impossible because we have constantly been contending with a new development: a seizure, a surgery, a hospital stay. You know...the usual. However, there is a small window coming up when we can take advantage of this offer. We will be there from the 3rd of December until the 8th. We can't wait. And there is more good news on the horizon. Nathan's reconnection surgery has been scheduled for January 5th, 2012. I know a lot of people think that 2012 might be the year of the apocalypse but that's impossible. We deserve a year of joy and well-being. Let's not ruin it with the end of the world, people!
I have promised to be a more regular poster in the past but it's sort of like my promises to stick to a diet for more than three days. Let's be right with ourselves (homage to Joy Demarest), it ain't going to happen folks. Please check the Team Bond Facebook group for mini-updates.