April 12, 2013:
Medical update: Last week’s chemo was AWESOME! Seriously.
No, I’m not joking. No
LOLing. It was week two so I only had
one drug. I had forgotten that Dr. Volm
changed my regimen. Therefore, I only
take Abraxane on week two and NO intrathecal drugs. It felt like a spa day. I’m not even being
snarky.
The slightest inconvenience was a quick pit stop at the
hospital. I was due for an echocardiogram.
No official word about the results, but that’s good news. If there were something wrong, they would be
all over me by now. I can honestly say I
feel well.
The best part was a visit with Andrea, one of my best
friends from college. She flew up from Tampa to stay and take care of me for
three days. We napped and watched movies
together. Miss her already.
Posts
So glad you are feeling better! Although we will never meet, I have been following your journey and you continue to amaze! Hope the good news keeps up!
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DeleteSo thrilled that you had a good week! So many folks that you will never meet are rooting for you and your family. Never never give up! God bless.
ReplyDeleteSo glad you are feeling better Elisa! My 3 year old is battling stage 3 cancer currently, so I am starting to get your "cancer speak" about chemo. You and and Nathan and your beautiful daughter are in our thoughts here in Virginia. One day at a time...
ReplyDeleteSorry to hear about your baby! Hope the treatment is successful!!
DeleteSending love and prayers Elisa. Glad its been a good week
ReplyDeleteCarol ( UK)
So happy to hear it was a great week - and praying that this week will be too! Awesome that a friend flew to visit too. Gotta love good friends - they are the best!!!
ReplyDeleteSometimes hanging with a best friend is the very best medicine. Glad you had an easier week with the chemo...thinking of you often
ReplyDeleteSo glad to hear you are feeling better this week. Your strength
ReplyDeleteamazes me. Waiting for good news on your next post.
Answered prayer!!!
ReplyDeleteSense of humor is required when being poisoned by chemicals and you definitely have that! That 'F' word just feels so good being spit out at times. That's what its for. Hang in there as you always do. Sending good healing thoughts your way.
ReplyDeleteYay! - what great news - a delicious break for you! our love from Suzanne and Fred (Fred is Sandy's uncle)xo
ReplyDeleteYou are heading towards the home stretch and I am so excited for you! I feel inspired by you everyday, prayers and all good vibes from Toronto are being sent to you and yours with this note.
ReplyDeleteThank God you are feeling well and for friends like Andrea! You will survive and live to write a book about it! God bless you and keep you always! xoxo
ReplyDeleteAwesome! Score 1 for Team Bond!!! You sound so upbeat in your writing and that just made my day. So happy that your BF was able to hang with you. Sometimes, that is all the medicine you need. Like the Beatle's sang, "I get by with a little help from my friends"! Those Liverpool lads were definitely on to something! God Bless and keep on feeling good!
ReplyDelete:) Chrisie
Great to hear you are feeling so buoyant and optimistic....keep it up! You are blessed with very loving friends and family around you. X
ReplyDeleteI pray for you and your family daily. I check for updates regularly and am so happy to have read your latest. Stay strong and know that people you will never meet like me care for you and your family and pray for you all daily. God bless..
ReplyDeleteSo nice to hear that you are feeling well this week! Thinking of you and praying for you always, all the way from Oklahoma. :-)
ReplyDeleteElisa,
ReplyDeleteBest fucking news I've heard all week! Wishing you more "Spa-like" days and fewer projectile ones.
Sarah of Pennsylvania
I am so glad that things are better this week. Yay for good weeks, no bad news and friends spending wonderful days! All my thoughts are continually with you all.
ReplyDeleteKeep up the good work, Elisa! Hugs!
ReplyDeleteKeep the faith! Looking forward to more and more good news!! God bless!
ReplyDeleteOn the news on facebook: I wished that we could divide up your excruciating headaches into many pieces, so that everyone of us who read your blog could take over one of the bits so that you are relieved, Elisa, and could sleep in the night. I know how terrible and long painful nights in hospital can be, and I pray for you that you can slip into a strength replenishing hours long sleep. I will think of you tomorrow on Thursday, and so many more will do too, from all over the world. Elisa, keep being strong, you got through so much, you will get through this too. May all available energy come towards you, hugs from Germany.
ReplyDeleteRe Barbara's post above: .... Thank you for alerting us who mostly read her blog... I do check the Facebook page occasionally... But had not in the last week. I am so sorry to hear of her headaches and her impending surgery today.
ReplyDeleteSo... Dear Elisa... Sending you prayers for a most successful surgery... And relief from your pain. I will be steadfast in my prayers for you all day Thursday. May G-d keep you safe. Also, peace and health to Nathan, Sadie your family and dear friends. Karen, Austin, Tx
She is dying, and it is harder for folks who love her than it is for herself.
ReplyDeleteLast I read.. Her surgery last Thursday afternoon "went well"...And I believe she went home on Friday. On their Facebook site Nathan said she was home and resting and "thank you to all for prayers, good thoughts", etc.
ReplyDeleteI will continue my prayers and good thoughts. I for one am not giving up on Elisa. Bless you Bond family.
Prayers for a speedy recovery. You are a remarkable woman with a special family and friends. I will continue to pray for you. Lynn from Minnesota
ReplyDeleteElisa.....Happy Mother's Day.... I hope you had a wonderful day with Sadie and Nathan! And Happy Mother's day to your mom & Nathan's mom!
ReplyDeleteThinking and praying for you.... Constantly!!!
Karen in texas
Thinking oh you and praying for you tonight, Elisa. Love, peace and health to you, Nathan and Sadie. Your friend in Oklahoma.
ReplyDeleteDear Elisa, I would like to thank you for sharing your story. It cannot be easy nor always comfortable. I'm thankful you are in the hands of a loving family and will continue to believe in your healing.
ReplyDeleteHas anyone on here ever heard of "Catfishing"? Because I'm starting to have my doubts about these folks.
ReplyDeleteOk, Diana, indeed, there is the phenomenon of Catfishing on the internet. And yet, you should think twice, no, three times, before you suggest this could be the case here. I would recommend to carefully read the history of this blog as well as the facebook one, then google for their TV appearance (I think it was msn today), and after this, think again. See, even if you didn't mean to, one can hurt someone with such a comment like you wrote it, and tremendously so. I for my part would be deeply ashamed if I would bring forward such an accusation without having the merest hint of a proof. I tried to write this in a polite tone, but truth be told, I am disgusted. - To Elisa: I hope you are a little better. Greetings from Germany.
DeleteBarbara, I have followed these folks from the beginning, and know the history, at least as it has been presented. You would be stunned to know the lengths people go to to perpetuate the appearance of their illness. I encourage you and others to read this article. http://www.thestranger.com/seattle/the-lying-disease/Content?oid=15337239
ReplyDeleteMy roommate told me about this and now I have questions too: I'm curious who owns The Team Bond Facebook page. Not runs it, but owns it. And I'm starting to get very curious about this family and their "Friend" Betsy in particular. Many questions.
ReplyDeleteFirst off, why no updates in so long? Seemed the updates stopped around the time the Fundraiser started. Secondly, Does the Bond Family even know that Betsy is doing this fundraiser? Are they aware that the funds are being directed to her?
Which account does someone send funds to? One day it is friendsofnathanandelisa@gmail.com the next it's the...shall we say more official sounding elisaandnathanbondfamilytrust@gmail.
Why are cheque payments not being sent to a trust account at a bank, as is proper, but instead to a home address?
Are both of the email accounts verified by PayPal? I didn't see that they were, so if not, why? How do we know the money is going to the "Bond Family" and not to fund "Betsy Marie Photography"? Which, incidentally, is one of only 3 links on the "Bond Family" blog. The other being the Facebook page, and the third being a page to send a donation with YET ANOTHER email address inspireteambond@gmail.com and a phone number in the Bronx?
One only needs to read this blog carefully and see it is NOT catfishing, real mention of doctors, real mention of treatment- pictures of Elsa in the hospital- how her looks have changed with the wear and tear of cancer- they also have been clear that the donations to not go to non profit- but a fund set up for the family- I suggest if you have an negative thoughts remove yourself from this blog as this is a family that needs all the positive energy they can get!
ReplyDeleteHi Tricia, first off, what you gave are perfect examples of the extremes catfishers will go. In my case, I'm not saying for sure the Bond's are catfishing, Myself, I'm more curious about "Betsy"s hand in all of this. She's everywhere. For all I know, "Betsy" might be the real story here.
DeleteThere is no official fund set up for the family that I could find. You can call something a fund or a trust, but I can call myself a supermodel, that doesn't make me one. These are all gmail accounts and from what I could tell, accounts that are not even verified by PayPal.
How it should be done is how it's usually done, a fund/trust account is set up at a bank, and people send their money to that account directly. That's the proper way.
Someone could be collecting money under the name of the Bonds, but pocketing it for themselves. IT HAPPENS ALL THE TIME! We don't really know where those donations are going. If Elisa is as ill as we are told, then it's highly doubtful that she and Nathan are paying attention to what's going on in Facebook Land. They could be getting had, and don't even know.
We have NO way of knowing who is really gaining from these THREE PayPal accounts. "Betsy" is selling some prints at a ridiculously high cost for this "fundraiser", but doesn't seem to find the time to respond to people asking for updates on Elisa. (not "Elsa", so perhaps I have read this blog more carefully than you.) It's hinky. I've also posted on the Bond Family FB, and I won't be surprised if my posts are pulled. But someone else before me was starting to ask questions too. "Betsy" responded vaguely, and asked the poster that further questions be submitted to her "off line" Oh really? Hmmmm.....
Do read that story my roomie Diana posted above. Blew. Our. Minds. People buy hospital beds, oxygen tanks, shave their heads, wear diapers, emaciate themselves, It's terrifying what people will do to deceive. And it's amazing how even the most intelligent, naturally cynical people can get pulled right in. Groupthink can be very insidious.
Wow Maggie. You need some serious help. If you don't like what you read then don't donate and take your bullying elsewhere. If your posts get taken down its because they are offensive,not because there is some grand conspiracy theory. If you had taken the time to read, you would have noticed that this blog was one elisa started to update friends and family. Cancer got in the way. And really-updating the blog is really not what they are running out to do. If she has any good days, they are likely spent with her daughter and husband not blogging. Honestly shame on you and your roomate for continuing to harass this family and their friends. I don't know Nathan or elisa or Betsy but I do have breast cancer and I offended that you even suggest she is faking this all . and countless others know she is not making this shit up.
DeleteWTF? Get a clue. Betsy is Elisa's college friend. She doesn't live nearby. So what? She is helping her dear friend via the Internet. She doesn't need to live in the same town.
ReplyDeleteIf only it were so. I bet Nate and Elisa would love to be Internet scammers because then this cancer nightmare would be over.
Maybe they don't have time to blog, because gee cancer can be all-consuming. If only people who have no knowledge of the situation would STFU.
You and your roomie need to think long and hard and get some proof before making these wild accusations.
You aren't reading, you are reacting. I am not saying Nate and Elisa are scammers, I'm saying that the way "Betsy" is administering all of these donation/fundraiser accounts needs to be fixed, and done properly, so people can have assurance that the Bonds are indeed getting the donations directly.
DeleteI wasn't the first person to ask about this sort of issue on the Facebook page, and suddenly after many days, "Betsy" pops up, makes a vague response and then suggests that if the poster has any questions to address them to her "off-line". Yeah, that sounds kosher.
I'm concerned about Elisa. Is it Nathan or "Betsy" doing the updates on Elisa?
ReplyDelete"Betsy's" reply to Wendy's question about who owns the FB page: "Wendy... Every single post is authorized by Nathan and/or Elisa. A group of Elisa's college friends started the "Team Bond" movement when they were both diagnosed. I (Betsy) am the one who posts the updates, but there is a group of people behind the scenes helping in any way they can. Not sure what your concern is... but feel free to message me off-line"
DeleteBut of course there is no proof that this is so. There doesn't seem to be a lot of proof in anything "Betsy" seems to touch. But when it comes to handling people's hard earned money in the form of donations and a rather suspect fundraiser, then you need to be pretty damned transparent. There are a LOT of rip off artists in this world, and some of them can be your closest friend, or someone you've never even met.
DeleteDiana and Maggie.... Seriously? Excuse my complete utter disbelief that you have been following Nathan and Elisa's story from the very beginning! ---- in short... They have appeared on national television morning programs... at least twice, they have had their story written about in NYC newspapers. They have had fundraisers... Which they've attended in NYC, and at least one in Tennessee at Vanderbilt. At one point Elisa has had reunions with her college roommates in support of her. At least one of her high school teachers (many times) has posted on their blog... Her parent's friends, her past students, Nathan's colleagues ..... She & Nathan have named their Dr.'s... The hospitals they've received their treatments. Promise me one thing... When you are both proved wrong ... You owe everyone who is praying and hoping for them AND their child an apology!!!..... As to Betsy... I don't know her... But I am a professional photographer... And as far as I'm concerned what she is doing is amazing. It is apparent she is flying to her friend's side at a moment's notice. Also... She is documenting Elisa's life... For her friend's, her husband... But most importantly for their daughter. How DARE you taint that!!!!! ---- and btw ... I do believe those of us that understand ... The prices reflect her thought, her art... But more importantly in this case.... The need for money for their (Elisa, Nathan and their child) care. ---- Do you have a magic ball?????? Do you know how they are paying for everything???? They have (in my estimation ... Even if everything medical is covered by insurance (excuse me while I roll my eyes at that!!))... Child care. Food. Travel to and from hospitals, clinics, grocery stores, drugstores, etc., etc. --- Do you, Maggie and Diana live in NYC?? Do you have a clue the expense of just transportation in that city. .... Now.... For something I'd rather not say... But because of your continue ranting not only on this site but now on their Facebook page.... Have you been following Valerie Harper's story. Have you realized that what Elisa is now going through is what Valerie Harper was diagnosed with about 2 or 3 weeks after
ReplyDeleteElisa's latest diagnosis. ----- think about it.... It's not a good diagnosis. She (and Nathan) I would imagine are not only using their every last bit of strength to fight this... But their last bit of strength to be together... With each other, their child, their wonderful family and their incredible friends. I for one... am almost grateful for one more day of there not being a new post! It means she's fighting!!!! It means she's on her way to defy the odds and beat this disease.... And you know what... When that happens... When she is finally Ok... (well I can't say what I'd like to say).... But I really hope you two just give this some thought.... What a horrible accusation....
So... To Elisa... I'm thinking and praying for you tonight. And I'm praying for Nathan's continued health and that sweet daughter's of yours happiness and much more time with you. Bless you three, your families and friends.. And ALL the people in the WORLD praying and thinking of and for you. WE are your strength!!!!! Karen in Austin.
Karen, we know from what we've been told that Elisa is dying. Please separate me from Diana's initial impression that there could be some fakery, and my concern that "Betsy" was actually, shall we say "cashfishing" at the Bond's expense. Let's keep the narrative straight please.
DeleteJust read anonymous' post questioning who is updating...It seems as though when Betsy posts (on their Facebook page). She is saying "from Nathan"... As she said on their Facebook page... She posts nothing that isn't first run by either Nathan or Elisa. .. On this blog... It's only been Elisa or Nathan.
ReplyDeleteHope we can put this to rest... And continue our prayers and thoughts for Nathan & Elisa... And oh! By the way... No one is forcing anyone to buy anything or send money. So ... If you don't believe in Elisa & Nathan... Just go away. Karen in Austin
Guys, it's all cooled out, and you can calm down. Educate yourselves why people like me can get suspicious. There are some very mentally ill people pulling complex scams CONSTANTLY on the internet. And I watch time and time as good hearted people continue to fall for them.
ReplyDeleteAnyone suffering from a serious illness, or their caregivers need to be educated why some people are going to challenge the veracity of their story or their donation efforts. I promise you it is NOT because we are assholes, it's because either we or someone we love has been burned HARD by scammers out there.
I was not the first to ask probing questions on the Bond FB page, and trust me I won't be the last, Read and you'll understand why people like me, and the woman who runs the site below worry when things start to seem even the tiniest bit "off".
You would be disgusted to know how badly people have been hurt by the many people faking on the internet out there. It has become an epidemic.
So first you all should read this,
http://www.thestranger.com/seattle/the-lying-disease/Content?oid=15337239
Then you might want to check out this site: http://www.warriorelihoax.com/
Best wishes to all.
Maggie, I wont calm down, -in the opposite, your posting makes me even angrier,- and I wont be satisfied until you properly apologized to Elisa, Nathan, and Betsy. Its the least you can do to recognize the harm you caused. Every bit of energy and time that Nathan had to invest to fend off your ridiculous statements is too much, Id rather he would have been able to play with Sadie instead. Then again, his wise words once again demonstrate what makes this family so strong: love and friendship. And this is whats its all about, yes? And quit wanting to heroically save us from scammers. We here are all able to make up our own mind and judge ourselves if something is a fraud or not. Instead of walking around, making untenable accusations and causing alot of distress you should now be so courageous and face your failure.
DeleteMaggie & Diana... Just read NATHAN''S response to you. On their Facebook page. . Interesting to me
ReplyDeletethat you can reply to me on this by saying, "Guys, it's all cooled out, & you can calm down. Educate yourselves......."!!!!!!
(for a second there I'm thinking did i mis- interpert their post???) Not one mention did ypu make to the people who might be reading this that NATHAN addressed you personally on their Facebook page. Obviously, I'll not hold my breath for your apology. ---- I do wish at this
moment I had the guts...and words ... To let loose... As Elisa would!!! Those of us who care... Say the words!!!! FUC. & Maggie & Diana: please apologize. No excuses. Thank you. K in A
No idea what you are asking for. I never made any sort of outright accusation to anyone. I only asked questions. In this country that is absolutely nothing to apologize for. In fact, this country would be better off if more questions were asked all around. I have NO idea what FUC. means, do you mean Fuck? I still don't know what that means in context. And finally I will not apologize, for I've done nothing to apologize for.
DeleteNathan, Elisa, (AND Betsy.)....
ReplyDeleteSure wish you'd post Nathan's response here. It's beautiful & articulate. Bless you all... I'm continuing my prayers & thoughts for you all... K in A
For someone who is so concerned, you weren’t willing to do any checking.
ReplyDeleteIf you felt something was “off,” couldn’t you have contacted the Bonds? Do some research and confirm that there actually is a family trust? The trust requires legal documents with the state and IRS. This all could have been cleared up quite easily. You did nothing but shoot from the hip.
I have read of such scams, and people who do such things are disgusting. And criminals. That is damn serious.
I did. And I went quite far. Another organization specializing in this sort of thing is also investigating.
DeleteI've let it go at this point. All of my posts have been deleted as well as the original poster who opened up the field of questioning. Transparency is essential in this field. Finally, please stop confusing me with Diana who had her suspicions about the family, when it was I who was more concerned about "Betsy's" part. I was actually concerned where the donation/fundraiser money was going. Worried it might not be to the Bonds. Two totally different points of view. I saw Nathan post on FB trying to clear things up. I trust that he has cleared up the confusion regarding where the funds were going. My posts and the original poster's initial concerns have been deleted. So much for transparency. Again I'm not the only one who's had suspicions, and I won't be the last. However, I wish the Bond family the very best.
Elisa's real life friends must be mortified reading this latest. I'm sorry it's come to this and if it were me, I'd delete this blog.
ReplyDeleteAnd for those engaging with the interlopers, you're wasting your time chastising them (not that they don't deserve it) because it's obvious they came to stir up trouble and succeeded. Sad.
If you are so concerned, and know these people so well, why are you posting as Anonymous? I never set out to stir up trouble, I only wanted to clear up some concerns before me and my friends considered donating. I'm not the fucking devil, and I'm surprised by the groupthink based uneducated reactions and mindless pearl clutching when open minded "agree to disagree" intellectual discourse should really have applied.
DeleteRabid reactionary poorly articulated squalls of "support" actually makes it look worse for the Bond Family (and their "friend"), than ignoring the posts entirely would have done.
I find it refreshing that at least Elisa has kept the comments on her blog open. For the last time, read the Stranger article, and you will see why the concern and need for an unfortunately cautious and questioning approach. One that I no longer have in this instance that you would have seen if my response to Nathan's post had remained.
Enough about tweaking about me, go back to supporting Elisa. Before Diana and I came around it was like crickets over here and on FB. Hopefully we at least encouraged folks to continue to support her, when it seemed most had become bored or distracted, and gone on to other things. And we are the assholes? Please.
Hi Elisa.... Just a hot & kinda humid evening in Texas... Thinking of you guys in NY.... I was there a few days ago... Nice (r) weather there!!! Thinking about one of your posts from a couple of years ago about walking The High Line... Hope you guys can get out and do it again soon. Love the fact that there are so many places now that one can use elevators... Anyways... Just thinking of you guys... Have a good, peaceful weekend. Healing prayers and thoughts! Karen in Austin.
ReplyDeleteElisa and family,
ReplyDeleteI am thinking and praying for you and your family from rainy Minnesota. Lynn from Lindstrom
Maggie/Diane,
ReplyDeleteYou seem pleased w/ yourself when you haven’t “caught” anyone. All you’ve done is distress the Bonds when the blog is here to support them. Anything that does not help the Bonds is a distraction. While you play a pathetic game of Gotcha.
The transparency you harp has been there all along. The Bonds’ story has appeared in NY papers; often in her blog, Elisa has mentioned her friend Betsy the photographer. This blog links to the Facebook page and vice versa. There was no smoke, no fire.
It should have been done behind the scenes as Betsy requested. If your concerns were not addressed at that point, next steps could be taken. You did it ass backwards.
The Bonds are beautiful people, never been touched more by people I've never met. What a damn shame for this.
I’m doing this for the next ones. Pray for the innocent souls that maggie/diane pounce on next.
No one wants to "catch" anyone. We all only send love to the family. I am not Diana, and she is not me. Let's give that a rest. I have never met the family. I've only seen them on TV, as so many have. I have never met them in real life. I wish them the best. I am sorry they removed my post sending them support. I am sorry for their horrifying situation, and I am sorry for their pain. I will never be sorry for opening the eyes of those who, unlike the Bond family, are working the ugliest of lies for financial gain.
DeleteElisa, it is really wonderful to learn from the update on fb that you all spend some happy summer days! I had to laugh when reading about Sadie getting up so early. Same "problem" with my niece and nephew, 9 and 6, just the other way around... they dont see any sense in going to sleep before its dark xD ... Enjoy the sun!
ReplyDeleteHi,
ReplyDeleteMy name is John and I have a quick question about your blog! Could you please email me?
Thank you,
John
From Jennifer Layne/TN : Hey you guys! I am so glad to hear ya'll are enjoying life & making music together, I hope you are feeling good when you read this, my support is endless and my hope for ya'll to have happy days, as many as possible, is eternal....the "Bond family" flowers I planted are coming along quite nicely and I hope ya'll are as well! love seeing your photos and look forward to reading one of your funny posts when you feel like writing again!
ReplyDeleteBonds,
ReplyDeleteSending love and light! You have been dealt a difficult hand, yet choose to live with grace, courage, and dignity. Not an ounce of bitterness or cynicism. More of that is needed in this crazy world.
All that good energy you send out in the world will come back to you. Prayers for continued healing.
All my love!
Prayers. Good thoughts. from Karen in Texas.
ReplyDeleteI am sad, because I think that woman who runs their FB page is not honest. Why would people only ever get very rare updates on her "friends", but get plenty of updates on her "fundraising". Something smells here. I would also think that Nathan would post here if his wife was not feeling up to it. This is the blog that started it all, not that FB page.
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteThis comment has been removed by the author.
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ReplyDeleteHowdy!!! Jen from Ten(nessee) here....hoping the four of you ( including Griffin) are enjoying each & everyday, you are thought of with love & hopefulness in my heart daily...
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