Wednesday, December 19, 2012

Clear as a Bell: Part 2

So the last post was "Clear as Bell", but we were still waiting on the brain.  Dr. Naryana cancelled my brain MRI for this past Monday because I also had an experimental PET MRI the day of the PET scan. It actually takes images of the brain as well.  The images clear enough to make a general assessment of the brain.

On Tuesday Dr. Volm told me that he had spoken with Dr. Narayna and  everything looked stable. What did that mean?  Stable? Volm said I should wait to speak with Narayana directly for a better explanation. Hmm...I was a bit apprehensive about the word "stable." I was hoping for something along the lines of vaporized, decimated, no sign of, no evidence of, no nothing.  However, the news is still really good as far as a brain doctor is concerned.  There are no new lesions and the ones that are there are very small, not growing and showing no activity.  Essentially, they are just hanging out now. C'mon guys, I know a great little spot in East Village where nobody would bother you. Oh, well. The lesions may never disappear but as long as I have no symptoms and there aren't any negative changes with the MRIs, than there is no reason to be worried.  Ok, here is where I release control.  Deep breaths.

As I said earlier, I was nervous before I spoke face to face with Dr. Narayana.  Nathan reminded me that this is our life now.  We are way ahead of the curve.  Very few patients with my diagnosis has progressed so far so quickly.  It is extremely likely I will live a very long life with continued observation and treatment.  I just have to manage my expectations.  He said to have faith that the news IS really, really good.  So, I'm going to break open the champagne on New Year's Eve and have a sip from someone else's flute.  It's going to be a great 2013!

Whatever you celebrate this holiday season, may you be filled with joy, health, hope and prosperity!

"...And to all a good night."

                            Clement Clarke Moore

45 comments:

  1. Wishing you guys a relaxed and happy holiday and new year!!!
    love
    Ashley

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  2. WOW!!!! This is such amazing news. I would take this as your new normal and just move forward with checks and balances as needed. You both are amazing and I will continue to hold you in the light. I am so excited and will drink a toast to both of you and that little Sadie. What a true blessing and such an amazing spirit you both have exhibited throughout this time since it was first announced you were facing such an uphill fight. But you did it with hard work and an amazingly wonderful soul and spirits that are willing to do whatever it took to make this all happen. You both never gave up. I am blessed to be in your FB circle of friends. It will be indeed a great 2013.

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  3. Bravo! That is fantastic news. Send love, laughter, peace and health to you and your family. Enjoy the holidays!

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  4. Awesome news!
    Tesha from Texas

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  5. Merry Christmas!! And here is to a GREAT 2013!!!

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  6. WONDERFUL NEWS ELIZA
    Happy new year and MERRY XMAS

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  7. Merry Christmas! What amazing news to start the New Year. Love to you and your family. You are always on my mind. xoxox Courtney

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  8. Such wonderful news, Elisa. God bless you and your dear family.

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  9. oh congratulations. I'm so happy for all three of you. have a very merry life :)

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  10. How wonderful to hear such positive news for a very deserving couple. May you enjoy life to its fullest, with your beautiful little girl. Every day is a blessing to be thankful for, no matter what life brings to each of us.
    Happy Holidays and keep smiling !!..

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  11. I saw you guys at the supermarket the other day. I didn't dare annoy you with my admiration, but you both looked great....and this news just helped sparked a little bit of renewed holiday spirit. All the best for 2013!!

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  12. I am so happy for the three of you and your families! What a fantastic gift! I'm with Nathan - this is VERY VERY good news and you should run with it!! My wish is for a less stress 2013 for the Bond family - may you enjoy your island vacation and wash your cares away for a little while! I am smiling both inside and outside for you :)

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  13. WONDERFUL news!!! Elisa, I have a friend of a friend of a friend who was ds w/stage 4 and had brain mets. That was EIGHTEEN YEARS AGO and still going strong! Yes, everybody's different and it is a helluva ride, but it can be done. I have a feeling that with your perseverance and the continued care, you'll do even better. Wishing you Nathan and Sadie a great holiday and happy & healthy New Year.

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  14. Blessings and peace to your strong and beautiful family. Wonderful news indeed that will carry light and love to all those cheering for you.

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  15. i couldn't ask for a better gift than to hear this wonderful hopeful news. wishing you and nathan and sadie a wonderful and healthy 2013. enjoy that champagne.

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  16. Well 2013 is really shaping up to be a great year, isn't it?? Congratulations!! I'm so happy for you all! :) :) :)

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  17. This is the best news ever! You guys are my heros. Enjoy your happy, healthy holidays with each other and Sadie - your health is enough gift for everyone! Keeping you in my heart in the west village. Yay!!

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  18. I cried very happy tears for you Elisa. You inspire me...everyday. Merry Christmas to you all!!!

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  19. I've been casually reading your blog since the day I read the article about you and your husband. I am truly happy for the both of you and am amazed at the progress you both have made. I wish nothing but the best for you and your family. Merry Christmas and a Happy New Year! I am looking forward to keeping up with your blog.

    - Marissa

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  20. Wonderful news Elisa! Yes, 2013 will be a fabulous year and many good wishes for perfect health and prosperity to continue. Enjoy your Holidays...I know you will. :o) Merry Christmas!

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  21. peace peace peace peace peace peace, oh yay, peace
    peace oy vey, oh yay, great news, peace peace peace
    breathe in, peace peace peace let go peace peace peace
    happy peace new peace year peace to all three of you

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  22. Just today I was thinking of you. Eliza, this is great news indeed. You certainly are a strong family, a model for us all. May you and all here that support you have a blessed and joyous New Year.

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  23. I'm so glad you didn't get an BAD news, but I agree with you ... GET OUT, DAMN SPOT. GET OUT!! It's a real leap to adjust to a sudden "new reality". This is not how we imagined our lives. Finding some way inside ourselves to be happy and find contentment with the awareness of cancer and it's possibilities can be so difficult. I have no answers except to say that the better, more normal I feel, the easier it is to forget about cancer. I wish you a new year of solid, continued good news and much wellness, fun, joy, and peace as possible. I remind myself that at least I'm still here to make memories. I hope it helps to know people near and far are believing for you.

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  24. Yahoo...Enjoy every moment of the HOLIDAY season with your family. You are an inspiration to us all!
    A wonderful start to 2013.

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  25. Wonderful news! So thrilled for you to be able to look forward and see a great chance at a healthy year to come!

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  26. Incredibly fabulous news! May you, Nathan and Sadie flourish and prosper and enjoy all that Christmas, the rest of this year and 2013 bring!

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  27. I'm so happy for you. Merry Christmas and best wishes for a wonderful, wonderful new year!

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  28. While I have not left comments you have not been out of my prayers. Think of you and your Mom so often. May yours be a most joyous Christmas. "Rejoice in the Lord always, again I say rejoice." Sr. Hildegard, Redemptoristine Nuns, Esopus, NY.

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  29. And the same to you and yours Elisa.

    Looking forward to more updates and good news in 2013.

    Carol ( UK)

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  30. Back at yah Elisa!!! Health, happiness, love, prosperity and all things wonderful! It can be a wonderful life (and that is not pun on words intended)!!!!!

    God bless the three of you and have a blessed Christmas and New Year!!!!

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  31. Every day that we can spend with our children and others who love us is a blessing! I hope your holidays are filled with laughter, and fun!

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  32. It's a beautiful thing!

    Merry Christmas and a Happy, Healthy, joy filled New year to the Bond family -

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  33. Yay, this awesome! Happiest of holidays to you and your family!

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  34. Your post made my heart swell with happiness! :) Merry Christmas to you and your wonderful family and here's to a wonderful 2013 to you! :)
    Lots of love,
    From the White Family in Minnesota

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  35. Merry Christmas to you all!

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  36. Wonderful news! Stable is a step in the right direction.

    Team Bond is a reminder of beauty in this world. I believe it is possible to love people you have never met.

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  37. Wonderful, beautiful news! Stable is a good word. Keep the faith my friend, you WILL have a long, wonderful life. Merry Christmas and Happy New Year!!

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  38. Enjoy that sip on New Year's Eve and to the BEST new year ever for you all!!

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  39. Good for you - a very Merry Christmas and a Happy, Healthy prosperous New Year to you all. You really are an amazing person even though i don't know you. I admire your strength and courage.
    You are an inspiration for all who suffer from this disease.

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  40. So happy to hear this good news! I'm glad you are celebrating! God bless you!

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  42. My thoughts and prayers and support are with you. I hope everything goes alright tomorrow and I will be thinking of you. Much love.

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