Monday, May 16, 2011

Still Hanging In

This is probably a poor choice of words, but I'm still alive.  I know I haven't written in a very long time but in my defense I do have cancer.

It kind of sucks that I haven't been keeping up with posting on the blog because I feel like I need to recap the last 6 weeks from my perspective but honestly I can't.  I can't even remember what I had for breakfast today.  The chemo brain (a.k.a.-lack of short term memory) has really kicked in.  I feel generally stupid a lot of the time.  I think I can say that, right?  I mean there isn't a lobby for stupid people out there, is there?  If there is then they aren't that stupid because they've organized themselves and are probably trying to become a protected class.  Frankly, stupid people should be a protected class and we should be the ones protected from them.  But I digress.

If I sound a little mean today it's because I haven't been feeling well all weekend.  Why?  Um, let me see...oh yes...I HAVE CANCER!!!

I must say I am so over it.  And I'm even more over Nathan's cancer.  His cancer is way worse than mine.  This chemo/radiation regimen he is on currently is horrendous.  He leaves every morning at 6:30 am to go into the city, has his radiation treatment at 7:20 for 20 minutes and then he's back by 8:30.  He then spends the rest of the day in bed or running to the bathroom.  I have never seen him so wiped out.  He can literally sleep for hours and has no energy to do anything other than watch multiple seasons of 24 or play RISK on his iPhoneI know, I know.  We missed that series when it was on in real time but thanks to cancer we are filling in our pop culture knowledge gap on all things related to Jack Bauer.  

While I am discussing his chemo/radiation regimen, I just want to thank the many volunteers who are waking up with roosters to chauffer Nathan to and fro.  We know it's not the easiest way to start your day so thank you again.

I'd like to send a belated thank you to Nadia Ackerman and all the musicians who I heard put on an amazing concert.  I have to say I was truly bummed to have missed it.  I mean a concert with all our favorite songs.  Who wouldn't want to go to that? Stupid seizure.  The only good part about being in the hospital was that I got two full nights of uninterrupted sleep.  That hasn't happened in the last two years.  I might as well have been at Canyon Ranch. 

A big thanks to Todd Lambrix and the many artists who donated their work to the art benefit last week.  It was such a brilliant idea and friends were texting us all evening about what piece they were hoping to snag.

LIVESTRONG also donated the proceeds from their booth at the NYC 5 Boro Bike Tour to us.  In fact, there are many events being held in our honor and for our benefit.  We can't thank you all enough not only for your generosity but also for your good wishes, time, effort and prayers. 

I'm going to sign off now because if I write anymore I am going to over think it, delete it or keep it as a draft and it will be another week before I write again.

xoxo, Gossip Girl...oh no...did I just admit to that?!

47 comments:

  1. I've been worried about you both and wondering how you were doing, and suddenly your post popped up - I wish I was closer so I could help you in some way.

    Hugs, Roberta (a breast cancer survivor) in rainy California

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  2. I laughed out loud when I read your words that stupid people should be a protected class! I am totally brainless after chemo... It is very frustrating, but I am learning to cope with the lack of memory. I continue to pray for you all. Hang in there!
    Laura
    stage 3 rectal cancer survivor
    www.laurashook.com

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  3. you still haven't lost your sense of humor!
    prayers and hugs each and every day to you, nathan, sadie, your families, and your friends.
    from boynton beach, florida.

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  4. There should be a class for stupid people that say stupid things. Imagine asking you to update us because I/we are all concerned. How selfish and stupid. (hehe, noted it was deleted...someone is not stupid!!! ;-) ) But like everyone else I am praying for you, Nathan, and Sadie. I truly believe in the power of God and His healing. I am so happy you are blessed to have so many friends and family out there to help and support you. I pray more show up.

    You both show such courage and I admire you and Nathan.

    God bless you both and I can't wait to read your next update.

    xo just me in Virginia

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  5. I am SO glad to see you are "back." Thank God for your amazing sense of humor. My mother used to say "I'm healthy as a horse, with a slight touch of cancer." I miss her dearly. Please keep blogging. I check it daily for updates and I am praying for both of you.
    Sue in Dallas, TX

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  6. So sorry to hear this. But I hope this too shall pass and when scans turn around and show great results this will fade into your memory bank and we will all see you and Nathan better.

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  7. man of oh man, I continue to be stunned by the quality of your badassness. Humor, sass, insight, correct grammar AND spelling! You should prepare yourself that the 'stupid' class might not accept you as a member. Please know that I carry you all in my consciousness every second of every day. I'm so deeply sorry that you're living in the midst of all this cancer suckiness!!! You have every right to be fully over it!! I will continue to keep you in thoughts and prayers.so much love, Ms Reed

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  8. Bless your sweet heart you never have to write another word if you don't want too! You are so right on chemotherapy brain is tough when we are in a fast paced digital world. You are so cute, jack Bauer is great I loved all the 24 seasons the last one I saw he wason a boat o china I think they are making a movie, hang in there, a guy in Cardiff by the sea gave my poor sweet bald radiation filled precious sister about taking his dumb parking place, she said, fuck you asshole I have cancer, leave me the fuck alone. She said it, remember Kathy bates ramming all the parked cars in the lot, fried green tomatoes, f em, yes damn it I HAVE CANCER, get it got it good listen j Christ it ain't f- ing easy! Damn!

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  9. My husband is still mourning the loss of "24". I told him... HOW many times do you think Jack Bauer can ressurect himself???...

    They ran out of options!...

    Prayers and healing thoughts coming to you from Connecticut.

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  10. Hi! I just read your story in the Vanderbilt Newsletter. Your family is in my prayers! Here are some websites I've come across recently...just wanted to let you know about them :) Take care & God bless you!

    http://www.ovguide.com/movies_tv/the_gerson_miracle.htm

    http://www.foodmatters.tv/_webapp_272413/The_Gerson_Miracle

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  11. Keep up the great sense of humor, will do wonders for you both I am sure. I am praying for your family. Take care, Lisa

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  12. I'm gobsmacked by your ability to make people laugh even in the midst of all this BS. You're awesome Elisa. I think about you daily. Hug each other for me.
    Karen Kristofferson Sparks

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  13. Stay strong. Thinking of you!

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  14. Still praying for you!! Sending strength to you all.

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  15. ALL you both need to do right now is to 'hang in there'. you don't have to be superheros ...just do your meds/chemo/radiation and zoz out. watch the stupidest tv and shows you can find...i got through it with tons of chick flicks and i watched every episode of 'sex and the city' so many times that i could quote the scripts (if my brain at the time could retain the info!). the haze will slowly pass. you two are the only ones who truly count - don't apologize. you are busy getting rid of cancer. it's hard work. getting rid of it. repeat that phrase nightly. be horizontal warriers until you can be a vertical warrier.

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  16. from one cancer survivor to two cancer survivors....you can do this! I was diagnosed with anal cancer last September. I survived 7 weeks of radiation and two rounds of two different types of chemo so I so relate to what you are going through. I have had two scans since completing treatment, and I am cancer free! Trust me when I say there is a light at the end of the tunnel, and it is not a train. Hang in there, fight like hell, laugh often, and know that cancer is beatable. Kick cancer's ass!

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  17. Elisa so nice to hear the humor in your post...it's what saved me during chemo brain! We are all rooting for Team Bond. Also, for tv? Try Modern Family...you'll laugh your ass off. Hugs from Canada!

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  18. Elisa, I love your spirit. I agree that you should do whatever the hell you want while you're busy beating cancer. Hang in there. Hugs and love to you! - Lori B

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  19. Thinking of you both! So much love the globe and round.
    xxx emily

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  20. So glad for an update. Praying for you all every day!!!

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  21. I laugh at your wit and I cry because I hurt for you. I know God has a plan, wish we knew what it was but I will continue to pray to him for healing for your family. Lord Jesus! Love from Texas

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  22. I can't say anything more eloquent than what has already been said by those who posted before me. Just know that you, Nathan, Sadie and your family are in my thoughts and prayers always. ALWAYS. God bless you all!!

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  23. I came across this Elisa and thought about you and Nathan. I do not believe God gives cancer as a test or some plan. I just think shit happens because we live in a fallen world that is not perfect.

    "I don’t believe things “happen for a reason.” But I firmly believe we can find meaning in the things that do happen." ~Juju Chang

    You all are always in my thoughts and prayers. xo

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  24. It's nice to see you back and writing. Cancer or not, you are still funny and honest. Love that. Stay strong, for you and for Nathan. Love to your gorgeous baby Sadie.

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  25. I am in awe of your ability to shine through this horrible time. I'm so glad you have support and wish I could do more. When I can, I'll donate again because I can tell you're amazing people.

    Sending you all love and light.

    Connie, Seattle

    PS: sorry, I only have a business account in Google or I'd use my personal link

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  26. Hang in there, I know it's tough. Am on my final round of chemo for testicular and I too have been catching up on old TV series that I haven't had time to watch ever. Thoughts and prayers are with you!

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  27. Reading all the posts from all the survivors and people sending their strength and love your way has filled me completely! I'm leaking now!

    Thank you for reaching out and telling your story, I appreciate your candor and your willingness to let total strangers like me into your lives.

    Much love from Oregon!

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  28. i just finished chemo for breast cancer in march, and am about 2 weeks out from finishing radiation. there IS a light at the end of the tunnel, and you can make it.... you'll look back and be amazed at what you've accomplished.

    stay strong!!

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  29. Big hello to nathan and lisa. I just read your post I'm very sad to hear of your discomfort from treatment. I've posted on the face book fan page and I will do it here. My mother has lymphoma and she had had a tumor removed from her neck. She seems to be getting worse as the years go by. Im just letting you know I'm going to start an alternative treatment on my mom were tired of waiting for a doctor to cure her with radiation and poison. My mother will begin orally ingesting oil extracted from hemp. This oil is an ancient medicine that was rediscovered by rick simpson. You have to watch his documentary "run from the curel". I know hemp is illegal but there if so much scientific data stating that canabinoids kill cancer cells while not killing healthy cells. I know your gona be skeptical but just think about your lil princess. My mother is a very conservative teacher and she told me "but son this is illegal" well you tell me this if living is illegal will you line up to die? All I ask is that you look in to this info I want you guys to beat this. The best testimony I've seen is a man who had one month to live and is cancer free. Thc and canabinoids kill cancer cells fact!

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  30. Keep the spirit and humour on!!
    Lots of good wishes and Luv!!

    ME from India!!

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  31. Sending strenght and lots of positive energy from across the ocean.

    Love from The Netherlands

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  32. That you manage to write with such humor, well, it just says so much. Sending strength...

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  33. So happy to read your post....even a few lines now and then, rather than a whole lot, is appreciated from those of us who are rooting for you both. Try "Lie to Me" reruns on Fox.com It is a fantastic series that will give you some pleasure. You are in my prayers

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  34. Thinking about you all. Glad you have such great support. Sending positive energy your way. Getting chemo in the hospital right now . My 2.5 year old is home with papa. Hugs . Alexis

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  35. Elisa and Nathan and Sadie-
    I am praying for you all. I am no one to any of you, merely a fellow Vandy grad. But I am someone who lost my father to cancer at age 47 (I was 12), and I am the mother of a 5-year-old boy who can't bear the thought of ever losing him or leaving him. It's awful, what you are living through, but I know you will keep on doing just that - living. God bless you.

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  36. Praying for you all. Keep on hanging in there and there will be sunny days ahead.

    PS - LOVE Gossip Girl - a little trashy tv is what you need. Still haven't watched the season finale but I'm rooting for Blair and Chuck, who is the real prince....don't you think?

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  37. Dear Elisa and Nathan,

    I have just spent all morning today reading your blog from the first letter to the last. I so want to say something but there are no words to what you guys are going through ...

    What I can say, though, is that I do admire you both's spirit and your being there for each other even when you yourselves are sick and feeling low. I admire your strength at your weakest and your hope at your utmost hopeless moments. There is indeed hope because there HAS TO BE a happy ending to all this. I wish I had the power to erase all this hell from your lives! I wish I had the means to help you in some way. I will try, though, I have some ideas. In the meantime, please know that I keep you in my thoughts and in my prayers and share your hope that g-d can't let this happen to you if g-d is good.

    I am saying all silly stuff here, I know, and I apologize for that but I am so shaken and mad to see good people having to deal with this awful illness. But I know you will be both healed and gain your strength back and be there for Sadie's graduation and when she marries a wonderful man. You have so much ahead of you, please keep fighting!!!!

    millions of hugs to all of you!!!

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  38. The brain MOSTLY recovers from chemo stupidity...just be careful what you commit to in the meantime! And Nathan's radiation--it IS deceptively debilitating. I've been finished since early February, but my skin is STILL darker. Keep on keeping on, you two!

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  39. Cancer sucks, doesn't it?

    Your sense of humor through all of this shows your incredible spirit. That spirit will get you through this whole journey. My prayers are with you, Nathan and precious Sadie everyday. Keep fighting...and laughing.

    (I just finished 8 rounds of chemo for triple negative breast cancer. Waiting to meet with my surgeon to schedule breast surgery, plus a full hysterectomy since I tested positive for the BRCA 1 gene mutation. Radiation later this summer.)

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  40. Thank you for your blogs. I am constantly praying for your family. I wish there was more that I could do from Wyoming. Thank you for helping me to keep things in my life in perspective. I wish you were not having to go through this cancer struggle to help me do this, but thank you. I believe you and your husband are amazing. Thank you for your honesty and for sharing your life with us. All my love-Wendy

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  41. Good to hear your cyber voice again, amazing that you are able to maintain a sense of humour during these most difficult times. I hope both of you are experiencing some better health this week.

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  42. Been thinking about you a lot. I've written before, but I'm sure you don't remember that. I'm just one of those concerned cancer survivors who understands what you are going through. Mine was lung cancer and 3 years out, I'm still OK, but live with the side-effects of treatment. Is it just me or why don't I see the humor of your blog everyone is talking about in their comments. Maybe I just take life too seriously, but I sense resignation. I'm so sorry Nathan is having such a hellish time of it, but I think you are being the protective wife and I know you are going through your own hell with the way your cancer has spread. I'm more of a spiritual type of person vs. being religious. I do believe in the power of positive thinking, but know that it's hard to maintain that kind of outlook while being in your spot. Thank you for sharing your thoughts with us regardless of what you will say. I'm glad you didn't try to rethink your post as it's better to say what's really on your mind. As always, I will be checking back in to see how you are doing and hope that your situation improves dramatically. Your loyal, long distance friends from Portland, OR. Vicki & her miniature poodle, Blazer

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  43. Having experienced "chemo brain," which has lingered for several years now, I wholly commiserate with you. And, I concur with your whimsical outlook on all of this. For me, humor is key to coping with life's unfairness, along, of course, with the love and support of others. Thank you for sharing your important story. Warmest wishes, Linda from Long Beach, CA

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  44. Hey Elisa! I first saw your story in Vanderbilt's last email newsletter, and you looked so familiar -- I'm thinking we were both in Manette Ansay's Intro to Creative Writing seminar freshman year? Regardless, I wanted to tell you that you've been on my mind and in my prayers ever since I found out about what you and your family are going through. I cannot imagine. You are surrounded the world over by people who care -- whether you know them well or not! :) -- Love from Nashville, Heather Ebert

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  45. I'm so happy yo have found your blog! I look forward to catching up on it.

    Heathergalawhat@yahoo.com

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